Tag Archives: Daily Telegraph
Will the NHS learn from this case – or will more patients be at risk?
Amongst all themedia hype, two aticles stand out.
The Daily Telegraph devotes its main page to Dr. Max Pemberton. Pemberton is respected amongst
NHS losing 2000 records a dayPatient confidentiality could be undermined by the new medica
Apart from losing our data, the Daily Telegraph says “Patient confidentiality could be undermined by the new medical records database” . This appaently has been confirmed by the NHS’s own risk analysis.
According to the Daily Mail, the service that at time seems to copy The Mad Hatters’ Tea Party, apparently manages to lose over 2,000 of our patient records a day. Now it wants us to allow it to give out our personal records to anyone who pays a fee.
Again, the Daily Mai says, it has even sold some of our records on Ebay. Apparently these were sold by mistake, but how can you sell a product on Ebay without going through a lot of checks and confirmations? And who got the money they made? Is it floating in the ether – unclaimed?
Perhaps these records were being sold by the Ward Nurses mentioned as “looking at eBay” by patients’ relatives, instead of attending to patients.
What happened to me
Attending a clinic in Out Patients at my local Foundation Hospital, the Receptionist looked up, “sorry, we’ve lost your notes. We’ll re-book you”.
But to her astonishment, I just said I would wait, unit they had found them. I had been inconvenienced attending the clinic; I had a list of problems, and didn’t want to wait to find out what was wrong.
So I sat down with a pile of magazines and waited from 2 pm until finally, at 4.50, she came over to say they had found my notes, and the doctor saw me. No apology – I just wondered if this was another way of reducing the waiting lists?
But I called their bluff, and saw the doctor, without re-sheduling an appointment and having another long wait.
When I phone NHS England, who officially are in charge for the programme (and spending out money like water) they deny all knowledge, tell me to go through to Dept. Health – who put me through directly to NHS England. One hand doesn’t know what other is up to!
MENCAP and RNIB (Blind), etc. have accused officials running the scheme of unfair treatment of those with disabilities. And if Mum is showing signs of Dementia, do you want insurance companies refusing to accept her as a bad risk? Allowing anyone to access this data (if they pay a fee) seems to usher in the 1930s and some rather nasty practices to ‘cleanse’ a population.
The NHS is quoted in the Daily Telegraph as saying “Medical records hold some of our most sensitive information and the threat to people’s orivacy of them being stolen … must not be underestimated”.
Now, if they removed our NHS number from the data being offered, we would have privacy – but this would negate what companies are paying for.
You can’t hide any of your private data today.
But the NHS is going to make money from collecting
our private Medical data in one easy-to-access form .
My email pings open with an invitation to a conference in London:
At the event delegates are expect to learn how to create the perfect evidence story and practical steps to creating Risk Sharing Agreements. Your are urged” find out the most imperative reasons that explain why your competitors have already confirmed attendance”.
As The Guardian says, pharmaceutical and drug companies will be able to access out data.
This could include private information that you might not want others to access.
So he counters with Video
The calls for the NHS’s supremo, David Nicholson, to resign are mounting.
He was in charge for some of the time when patients were being abused in Mid-Staffordshire hospital – but although Dr. Max Pemberton of Daily Telegraph, Julie Bailey of Cure the NHS and many others are calling for his resignation – and even to go to prison – he counters with a rambling video about the NHS.
He can’t even dress properly to be filmed – perhaps he considers it isn’t worth getting properly dressed when sending out his message to the NHS – or is this all he thinks the NHS is worth?
Watch the video on http://www.commissioningboard.nhs.uk/everyonecounts/everyone-counts-intro/
Who is it?
No – it’s not the Plumber – actually the video focusses on SIR David Nicholson – perhaps he can’t afford a tie on his vast salary
It’s entitled “Everyone Counts” – one of the buzz phrases thought up by the expensve Consultant hangers-on employed by the NHS. Problem is , they think up these phrases, but no-one actually thinks they should carry the idea on, and Plumber Nicholdson doesn’t seem to know either.
So don’t hold your breath – we STILL won’t be listened to. But it rather shows us, in a week when the Francis Report shocked the Nation, that patients still will have to fight their own battles; NHS big-wigs still only pay lip service to consulting Patients. Am still puzzling over why I can’t be sent a copy of the report from my recent MRI scan: was told I couldn’t have it “due to patient confidentiality’!
And David Nicholson is still hanging on to his job, even after all the calls for his resignation post the Francis Report.
So whatever Francis Report said, it is still down to us to make a fuss if we don’t get what we are entitled to.
Can’t understand NHS-speak?
You are not alone!
The secret of dealing with medical jargon today is
Don’t to let them get away with it.
Now Lansley has pushed through his mega-unpopular bill, his minions can excel themselves writing even more gobble-de-gook, to ensure we can’t understand what is going on.
Writing in the Daily Telegraph, Dr. James Le Fanu said he would like to ban ‘the use of those meaningless buzzwords of managerial jargon that sustain activities to no good purpose’.
So, to help understand the NHS jargon, here are some basic translations of words and phrases you may come across, when dealing with hospitals, etc .
Definitions of some NHS buzz words
best practice – what you can get away with
clinical champion – NHS-speak for someone who is given a nice job title to make them feel important; often backed up with a clipboard
cohort – scholars thought these were Roman soldiers, but they are now seen to be lurking in hospital corridors
Complaints office – this has developed the art of writing three pages saying nothing to a fine art; you are supposed to be so pleased the NHS has wasted cost of a postage stamp on you, that you subside quietly
development opportunity – what’s given to the new Outpatient receptionist who manages to lose all your notes
dignity – patient can’t tell if curtains are drawn or not
grow – NHS-speak for increase
LINk – Local Initiative Network. (another of those lovely Goverment quangos, but this has some credibility). Tasked with checking QAs (Quality Assessments) reports from local hospitals. LINks have the power to fling these reports containing the gobble-de-gook back and ask for them to be written in plain English.
mission statement – what the Chairman’s nephew comes up with when his company manages to get a contract to spend the money that was floating around the hospital after the last budget overspend
moving forward – opposite of what happens after the hospital committee has put in ‘improvements’
NHS Choices – the appointments office whose job it is to confuse you so you are unable to make an appointment that suits you, With any luck the appointment is so much in the future you go privately, taking you off the list and saving the NHS money.
QA – quality assessment These are the reports hospitals now have to produce for their local LINks. Theory is they identify quality of hospital’s service. Actually, a test in how those who compile QAs manage to ‘overlook’ items of important to patients, such as MRSA, Mixed Wards, etc.
rolling out – new ideas to paper over the cracks
service users– another term for patients. Sounds as if we are lumped in with cars being sent for annual MOTs. Perhaps this could explain some of our treatment
Stakeholder engagement -NHS website explains this is all about “building relationships with people who (sic) you affect through your work, or who could make an impact on your success. It is the foundation of effective organisational responsibility, and refers to the formal management of the human dimensions of change”.
Er – don’t they mean ‘getting on with people’?
STAR-PUs – watch out if you ever see this written on your notes! Apparently it means ‘Specific therapeutic group age-sex prescribing units’. No-one else knows what it means either, but it sounds nasty
Symbiotic monitoring system” and “synbiotix database” – latest jargon that fills out spaces in a report. You don’t need to know what it means – just where to insert it
Team Player – beloved phrase of NHS. It was explained to me that a team player backs up their ‘team’ – in other words when someone is brave enough to whistleblow on bad practices, team players stand together, support each other and ignore what’s wrong. It’s not about the patient. In any ‘team’ meeting about a patient they are the last person you will ever see involved. Wonder if that was why it took so long for something to be done in Mid-Staffs?
World class – NHS services on a par with Third world services
Extract of more meaningless phrases culled from QAs
“the prevention of VTE is a national target and is a national CQUIN” “.
and/ “planned protocolised care pathways for example using the enhanced recovery programme methods”. Er – what?
Asking NHS staff friends if they could interpret, they were clueless. But they replied
Medic A : My personal horrors are “people we serve” which generally means the opposite.
“Challenging” is another which just means “more difficult”. ”
In fact, the more one thinks of words the more there is a general rule that the meaning in the NHS is the opposite of the real world e.g. “consultation” “involvement” “choice” and of course “complaints”
B (brilliant surgeon) has the last word: “The more time they have on their hands the more junk they propagate. Only people as arrogant and devoid of work can believe that everyone else has time to spare!”
P.S Proving NHS speaks a language most of us can’t understand, our local hospital has named a Ward Marie Celeste Ward. Marie Celeste was the name of the sailing ship found abandoned mid-Atlantic, and has been a mystery ever since Sir Conan Doyle wrote about it. Now, the name of this Ward has been giving patients nasty turns ever since, and does rather show that those working in hospitals do speak another language.
Don’t blame patients
All too often today, you go to the doctor for a medical problem.
- A rushed appointment leaves you frustrated.
- You haven’t been able to voice half of your problems
- But, like a child, you leave clutching a prescription for pills that are supposed to make you better
- But somehow you are not sure.
No wonder so many patients don’t bother to take the prescription to the chemist. Or even worse, collect the prescription but then never bother to take the expensive drugs. In their mind they know that pills are not the solution to their medical problem, but aren’t able to take this further because doctors are using pills as a way of keeping us quiet.
So often handing out a prescription, and then ‘they’ won’t ask time-consuming questions, seems to be today’s answer to a whole range of medical problems. With appointments getting shorter and shorter, patients are already seeing the end result of the Health and Social Care Bill, with cuts everywhere including time spent with patients. Solution seems to be prescribe more pills so we walk around in a zombie state, not alive enough to ask too many questions.
As a patient who uses private treatment when I can afford it, but has to make do with NHS for most care, appointments take two different courses:
Drugs cause a vicious cycle – so if you are worried take your tablets off to your nearest Pharmacist. Ask them what are consequences of taking each one, and which ones you might do without.
No-one should become addicted or used to these drugs – keep them for when we really need them.
Low Alcohol wines are best – and no longer taste vile!
Once upon a time ….. no-one who knew their wines would touch a low alcohol variety.
Offered this, wine lovers would shudder, and go on to better things.
But wine makers are a savvy lot, and – dare I say it – their job doesn’t always encourage the best of health, so they have started to take a serious look at reducing the percentage of alcohol in their wines, without impairing the gorgeous taste that makes wine what it is.
And with the medics all saying we must reduce our alcohol intake, wine lovers will welcome ‘new’ low-alcohol wines appearing on the shelves. And When Jonathan Ray, the well-known wine writer for the Daily Telegraph and the Spectator Magazine, lifts a glass to toast low-alcohol wines, you can be sure that these are drinkable – very drinkable.
Recently Prof. Roger Corder has published The Wine Diet, and has made some very interesting comments about healthy amounts to drink – see http://after-cancer.com/food-and-diets/wine-is-good-for-you/
French growers are starting to produce some good low alcohol wines. France’s record on cancer care is probably best in the world; so it isn’t rocket science to deduce that a few vignerons have come face-to-face with their doctors, and decided that they need to take their warnings about alcohol seriously.
And they are succeeding
They aren’t the only ones. Hop over the frontier to Italy, and wines such as Prosecco are gathering a following. Again this was labelled as ‘poor man’s champagne’ and gained a bad reputation, but recently wine-loving friends have been passing round the bottle in smart gardens, as the ideal drink for summer days.
Ray recently conducted a wine tasting for the Daily Telegraph, and said, “Prosecco is invariably lower in alcohol than champagne and other fizzes. This is hardly the most complex of examples, but it is light and refreshing with a touch of sweet fruit on the palate and a lively, crisp finish. Enjoy as an aperitif or as the base of such cocktails as the Mimosa (with fresh orange juice), Jo Jo (fresh strawberry) or Sbagliato (Campari and Cinzano Rosso). Sainsbury’s Prosecco Frizzante NV, 10.5%vol, Italy (£4.99; Sainsbury’s).
However, for serious drinkers, he is happy to recommend a 2002 Tyrrell’s Vat 1 Hunter Semillon, 10%vol, Australia (£19.99 as part of a mixed half dozen; Majestic). He says “this is seriously grown-up stuff which proves that lack of alcohol doesn’t necessarily mean lack of character. From the Hunter Valley in New South Wales, this is picked at early ripeness, cool fermented and aged briefly on the lees before being bottled. It is fresh and citrusy, but creamy and toasty too (despite no oak). Superb with roast cod and pancetta.
But if health is of serious concern to you, what about a 2008 Torres ‘Natureo’, 0.5%vol, Spain (£5.99-£7.99; Soho Wine Supply 020 7436 9736, The Bottle Stop 0161 439 4904, The Vineyard 01306 876828, Magnum Wine Shop 01793 642569).
According to Ray, “this is so low in alcohol that it isn’t officially wine at all. Made from muscat, it is fully fermented after which the alcohol is removed. Fresh, fruity and grapey with hints of apple and peach, it is surprisingly tasty, if a bit short on the finish.
The tourist board of the Rhone-Alpes region has become very health-friendly. Lyon, the capital city (2nd city of France) has superb, world-renowned cancer treatment centres, and Isabelle Faure and her team at the Tourist Office are encouraging health tourism. All over the region you can go for health checks, or specialised treatment. A friend who went there for cancer treatment had chosen to have her operation in one special hospital, “because they have an excellent wine list”. (Needless to say she is French!)
Alexandra du Mesnil du Buisson, an English-speaking friend in the region,lives in the Chateau de Longsard – which has lovely apartments for rent – ideal if someone is undertaking cancer treatment, and the family wants to stay near by.
She emails “I called our wine making friends and they are very happy that I mentioned their wines. They make a red sparkling wine at 6.3° It is made by the méthode ancestral as opposed to methode champenoise.
They own the largest wine estate of the beaujolais, Chateau Lacarelle, and they have now put a large portion of it into making organic wines. Their web site for the organic wines is www.domainedesgrottes.com
If you wish to call to get more information please do on 00 33 474 034 080.
As for us at Chateau de Longsard, we have several self catering appartments in the chateau grounds, and are 30 min from most hospitals ( by car ). We have a ground floor appartment for guests with mobility problems, and other 2 bedroom appartments, all romantically looking the rose garden.
And off course there is no problem with languages as we are all fluent in English. If you drive there the chateau is within a few miles of the main autoroute.
DR. ALF BLOG http://dralfoldman.wordpress.com/2012/01/11/three-open-questions-on-uk-healthcare-policy-a-detailed-response-from-john-gelmini/
HEALTH TALK ONLINE Interview about Breast Cancer by Suman Prinjha of University of Oxford Dept. Primary Care http://www.healthtalkonline.org
TOTAL HEALTH : Web magazine for Doctors http://www.totalhealth.co.uk/contributors/ms-verite-reily-collins/top-tips-surviving-cancer-cancer-survivor
Italy approves British remedy as safe Natural Remedy for Morning Sickness
About Insurance: http://www.spahaven.net/index.php/health-spa-news/sage-advice-on-travel-insurance/comment-page-1/?rcommentid=14416&rerror=incorrect-captcha-sol&rchash=cd78841ee5692608c493dcab8367bc4b#commentform
NHS future forum ‘listening’ events | Abetternhs’s Blog
About.Com writes about Survivors – and helpful information
I was impressed by all the information, the honesty and hard work that was put into finding answers, addressing questions and helping with just the everyday experience of cancer. For those of us who have gone through the disease, this is so refreshing. It is hard to get answers at times and equally hard is answers to what to really expect. Not everyone likes to hear the hard brutal truth and because of that we get the “sugar-coated” end or sometimes even worse, we are just expected to deal with what is sent our way. Not with Verite Reily Collins! Ms. Collins tackles some of the tough questions, and the biggest one of all Tamoxifen!
About.com Search Results:
PRACTICE NURSE MPs lobbied on cancer services. 11th December
MEDICAL NEWS TODAY 18.06.09
Managing cancer treatment side-effects 14th Aug. 2009 (most recent)
European Approach to Cancer Care – 12th December issue pp 32
WOMAN My Breast Cancer Diary
YOGA MAGAZINE Comforting Cancer ; Cancer Awareness ;Recovery after Surgery
ARABELLA Overcoming Cancer
THIS FRENCH LIFE Website Info on Cancer Treatment in France http://www.thisfrenchlife.com/thisfrenchlife/2008/10/heading-to-the.html
LIFESCAPE MAGAZINE Cancer Resource Centre
“Hot Air From Health Minister” – published on EzineArticles.com:
Self Help Website http://www.self-help.org.uk/search/?entryid54=60400&p=9
Well-known Journalist Simone Costello has put this site up on her blog http://fromrattopositiveparent.blogspot.com/
Cancer Association of Namibia recommends : http://can.org.na/?page_id=11