Category Archives: IBC

What to do about 'The silent cancer killer'

Inflammatory Breast Cancer Association

Image via Wikipedia

The video that made

 

me write the book

 

Some time ago the publishers, Anshan, saw this video

 

Consequences

They were so concerned they wrote to me, asking if I could write a book for those with Inflammatory Breast Cancer (IBC), explaining

  • the processes that happened to all breast cancer patients
  • highlighting the differences for IBC
  • what happens during treatment.

Simple things, in plain English, that might help those with any breast cancer, particularly IBC, understand what was going on.

Normally they publish serious medical books written by eminent doctors.  But they had had great success with a book written by a patient about dealing with pain – and realised there were patients out there who didn’t want all the technical jargon, but just wanted to know about the ‘little’ things doctors brushed aside.

Although it wasn’t a ‘happy’ subject, the book almost wrote itself.  All I had to do was remember what happened to me when undergoing treatment – and in particular what puzzled me – rather than what the doctors expected would be of interest to me.

Every patient is different, but there are so many little things we breast cancer patients – and in paticular those with IBC – want to know.

I finished the book sitting up in bed waiting to have an operation.  I had got on with the writing as I didn’t think I would be able to sleep.   But at 3 am I wrote ‘The End’ and went off to sleep like a baby.  The nurses said they had never had such a relaxed patient, and the operation was a success!

More details from publishers: Enhanced by Zemantahttp://www.anshan.co.uk/ecomcart/

Easy-to-read, compassionate guide to Inflammatory Breast Cancer

INFLAMMATORY BREAST CANCER.

VERITE REILY COLLINS

KEY SELLING POINTS
  • Compassionate guide for suffers of rare cancer.
  • First book on the subject.
  • Easy to read, serious issues treated with humour.
BOOK INFORMATION
ISBN: 9781848290396
Pub Date: August 2010
Format: paperback
Extent: 144 pages
Inflammatory Breast Cancer (IBC) is a highly aggressive and thankfully rare type of breast cancer, which is not yet widely recognised both by the public and the medical profession.

When a patient presents to her GP, there is often a misdiagnosis in the first instance. This is because the symptoms include swelling, redness and heat in the breast, but often no discernible lump. Consequently the condition may be only diagnosed as a less serious dermatological problem.

The author is herself a survivor of breast cancer and can therefore write with expert knowledge and experience. She discusses with compassion, insight and humour everything a person ought to know about IBC –

initial fearsdiagnosis – treatmentoperation – post-op care. She discusses the different forms of treatment, and also the side issues – where to find support from carers and friends, what to eat, how/where to go on holiday, etc.

A valuable resource of information both for the patient and the professionals involved.

Of course the book also tackles the scientific and medical issues and the various drugs used in the treatment, but Verite writes throughout in a clear, simple style that enables easy understanding of the more complex details.

There are many books on breast cancer, but this is the first to specifically discuss inflammatory breast cancer. It is a guide book that will be immensely valuable to IBC sufferers, their carers, family and friends, and to GPs and oncologists around the world.

CONTENTS; 1. Introduction 2. What is Inflammatory Breast Cancer? 3. Diagnosis 4. Help – what should I ask doctors and nurses? 5. Where do I find sensible website info? 6. Operation 7. After your op – returning home 8. Treatment after the operation 9. How will I feel? 10. Chemotherapy 11. Radiotherapy 12. Hormonal drugs 13. Handling side effects from chemo and hormonal drugs 14. Complimentary and alternative therapies 15. Why have massage? 16. Now I want to know – where to find help 18. Carers and friends – how they can help 19. Food, weight gain/loss, what can I eat 20. Take a holiday – but where/how? 21. Doctors are humans – how to deal with them 22. Having fun – where to go for information on what’s good 23. The help minefield 24. Regaining my life – and handling change 25. Contacts, organisation, charities, international agencies and other helpful people 26. Index
This is what the publishers say – I say that this book should be issued with a health warning, as I AM NOT MEDICALLY QUALIFIED.

But I wrote the book from the heart, trying to tell readers what they MIGHT expect, so that treatment didn’t come as a shock.  But also, where I could, suggesting ideas and products that myself and others had employed, to try and make the treatment experience easier.

When I was treated, I found that the Internet was incredibly helpful – so I have tried to include as many approved web addresses as possible, to make it easier to find things out.  Readers can use the book as a ‘shopping list’ of contact information.

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New book on Inflammatory Breast Cancer

October is Breast Cancer Awareness Month
Flickr

There are many books on breast cancer, but this is the first to specifically discuss inflammatory breast cancer. It is a guide book that will be immensely valuable to IBC sufferers, their carers, family and friends, and to GPs and oncologists around the world.

http://www.anshan.co.uk/pages/anshan03.html

Inflammatory Breast Cancer (IBC) is a highly aggressive and thankfully rare type of breast cancer, which is not yet widely recognised both by the public and the medical profession.

As it is such a rare form of Breast Cancer

1.  The book is being written in layman’s language, for patients themselves.

2.  I am NOT medically qualified, but had breast cancer. Once treatment is started though, the treatment path is very similar. The publishers wanted a  book written from a patient’s view – not the official language that might be difficult for us to understand.

3.  Every patient reacts differently to treatment, but many aspects are common to all.

4.  The book covers  conventional treatment, with clinically-trialled drugs, NOT alternative treatments. But is writtten to show everyone that although this diesease is dire, there is hope.

The publishers, Anshan, say

When a patient presents to her GP, there is often a misdiagnosis in the first instance. This is because the symptoms include swelling, redness and heat in the breast, but often no discernible lump. Consequently the condition may be only diagnosed as a less serious dermatological problem.

The author is herself a survivor of breast cancer and can therefore write with expert knowledge and experience. She discusses with compassion, insight and humour everything a person ought to know about IBC –

  • the patient’s initial fears
  • the diagnosis
  • best place for treatment
  • the operation
  • postop care

She discusses the different forms of treatment, and also the side issues – where to find support from carers and friends, what to eat, how/where to go on holiday – a valuable resource of information both for the patient and the professionals involved.

Of course the book also tackles the scientific and medical issues and the various drugs used in the treatment, but Verite writes throughout in a clear, simple style that enables easy understanding of the more complex details.

CONTENTS; 1. Introduction 2. What is Inflammatory Breast Cancer? 3. Diagnosis 4. Help – what should I ask doctors and nurses? 5. Where do I find sensible website info? 6. Operation 7. After your op – returning home 8. Treatment after the operation 9. How will I feel? 10. Chemotherapy 11. Radiotherapy 12. Hormonal drugs 13. Handling side effects from chemo and hormonal drugs 14. Complimentary and alternative therapies 15. Why have massage? 16. Now I want to know – where to find help 18. Carers and friends – how they can help 19. Food, weight gain/loss, what can I eat 20. Take a holiday – but where/how? 21. Doctors are humans – how to deal with them 22. Having fun – where to go for information on what’s good 23. The help minefield 24. Regaining my life – and handling change 25. Contacts, organisation, charities, international agencies and other helpful people 26. Index

Order from

http://www.anshan.co.uk/pages/anshan03.html