Monthly Archives: March 2014

Taking a daily bath – unlike Vivienne Westwood


Vivienne Westwood says she often

skips daily bath

Uggghh!!  When we learn that “cleanliness…” etc. from an early age, are taught to wash our hands, and hospitals are vigilant about personal hygiene, you would think having a daily bath or shower would be part of our daily routine for everyone.

When millions around the world have to walk miles to get water, we sometimes forget how lucky we are  to turn on a tap to have this gush out.  But importance of hygiene is bought home to us when visiting friends in hospital, to find they are in a single room because they have picked up a ‘hospital infection’


Was thinking of this when in hospital last week.  As I needed cheering up I used Neom’s Morrocan Rose to do the trick.  First of all, a dishy young doctor sniffed – and said “I can smell roses”;  I thought this was flowers belonging to another patient.  But then a nurse came by and asked what I was wearing, “as it smells of roses”.

Neom provided a real boost to my ego!

Cancer patients are given worse treatment at the GPs


Surgeries driven by quotas

Try to get an appointment for a review of long-term cancer drug side effects, and I am faced with a 3-week wait for an appointment.  When I get there the doctor tells me “if you find out anything let me know”, when I ask what I can do.

Last week I was phoned by surgery secretary.  Dr. X would like to see you for a review of your diabetes.

But I am under an eminent Consultant at X hospital.  I don’t need any more reviews.

Oh.  The Doctor still needs to see you.  Can you come in tomorrow?

At the appointment, I had a list of current problems concerning cancer survivorship.  But first, had to answer questions about my health concerning diabetes.  Tried to explain tactfully that my hospital Consultant was perfectly happy, and had taken loads of tests.

The Doctor spent wasted time taking me through what these tests had said, and then asked for copies (he obviously hadn’t seen them amongst the huge file full of reports re cancer treatment).

At the end of my appointment, I then tried to ask about cancer ……  “Make an appointment to come in again”.  And I left having had a totally wasted experience.

Saving Money

Funnily enough, after my last Consultant’s appointment, he had said he was so pleased with my progress that he was recommending I take half strength tablets.

But my GP won’t authorise the prescription for the lower strength;  the Pharmacist says this is because these tablets cost £1 MORE per month!!!  So I have to pick them out amongst 14 in my Dosset box, cut them in half, and throw half a away.

What a waste!


Could this anomaly in the way we are treated be because doctors get 6 points (QOFs) on their file for treating cancer patients?  Yet they get over 90 QOFs each time they see a diabetic patient?  And QOFs give extra brownie points for payments.

Tackling Mike Richards (ex-Cancer ‘Czar’) over this, he dismissively said Dept. Health were looking into this in 2014.  Why did I get impression the Dept. weren’t going to spend much time on subject.

But next year I shall refuse my ‘diabetes review’.  It was a total waste of MY time, and gave me no information what I don;t get from my hospital consultant.

But, if it gives the doctor more income ……….



Doctors fail cancer patients


And Patients have to face lies….

such as “your GP will look after you now”

Believe this – and you will believe anything.

Yes, there must be some doctors who genuinely care for their cancer survivor patients, take to heart the advice that they must supervise our after-care, but their patients are probably lucky enough not to have long-term side effects from their treatment.

But if you are one of the half-a-million suffering from major problems after taking Tamoxifen, or one of those on any other cancer drugs that haven’t yet been investigated, and you are on your own.  After a rushed appointment trying to explain medical problems caused by drugs to a dis-interested GP, she smiled at me, as if to excuse her lack of concern, saying “you know much more about cancer than I do”.

Considering one in three of the population is expected to have or get cancer, I find this frightening.

Papers condemn our treatment

Media currently has scary stories, ranging from the average poor diagnosis we can expect if we are concerned that cancer has returned, to the headline in the Daily Mail that we are ‘failed by insensitive NHS doctors’.  This comes from latest report from Breast Cancer Care.

And it is almost IMPOSSIBLE to find one of the elusive specialist nurses that are, according to the Dept. Health, to be tasked with looking after us once we are discharged from hospital.  In my own case it took three years of demanding, before I was given the name of ‘my’ CNS.  One appointment with her, and that was the last I saw of her.  More fuss, and I am told I have another CNS – but “she isn’t in post yet”.  Six months later I have one very positive appointment, then yet again she leaves.  And I have given up. I feel that I am making them leave – what’s wrong with mr?!!

We are Alone

This treatment makes us feel very alone;  we long for the after-care that every Health Minister says is our right – maybe with an election coming up, we could ask prospective MPs “What are YOU doing about long-term after cancer care?”  That would put them on the spot!