How NHS will make money from OUR data – but we will have difficulty seeing this

nhs

You can’t hide any of your private data today.

But the NHS is going to make money from collecting

our private Medical data in one easy-to-access form .

My email pings open with an invitation to a conference in London:

Did you know that NHS, NICE, G-BA, HAS, AETS, EFPIA, Bayer, AstraZeneca, Pfizer, J&J and representatives from many other organisations are expected to gather together in April for the second annual Real World Data conference! 

At the event delegates are expect to learn how to create the perfect evidence story and practical steps to creating Risk Sharing Agreements. Your are urged”  find out the most imperative reasons that explain why your competitors have already confirmed attendance”.

As The Guardian says, pharmaceutical and drug companies will be able to access out data.

This could include private information that you might not want others to access.

Cost?

Early registrants benefit from a €600 discount!  
This is obviously a profitable field, and costs range from around £450 –
over £2000.
Makes you think.
And I am not alone
Many expert are worried what the NHS is going to do with all our private data. I wrote about this under https://aftercanceruk.wordpress.com/wp-admin/post.php?post=14625&action=edit
Dr. Max Pemberton in Daily Telegraph of February 10th expressing concern over ‘Big Brother’ threatening tactics towards a caring GP, concerned enough about this data that he has told his patients that he is opting everyone out, until they tell him they want their data submitted.  “in trying to squash  Dr. Gancz’s rebellion, NHS bosses have made him a cause celebrate for those who feel the Government is becoming Big Brother-ish and dismissive of people’s concerns about confidentiality and privacy”.
And Daily Mail of Feb. 8th quotes ‘NHS Data Expert’ Prof. Sir Brian Jarman saying “insurance and drug firms would be able to identify patients ” from this data.  So be prepared for even more junk mail to clutter up our letter boxes.  Their Dr. Brian Scurr also has very factual piece, in which he warns readers not to delay if they wish to opt out.
verite@greenbee.net

 

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2 thoughts on “How NHS will make money from OUR data – but we will have difficulty seeing this

  1. Tamara August 30, 2014 at 11:17 am Reply

    I have read so many articles concerning the blogger lovers but this article is actually a fastidious article, keep it up.

    • veriterc August 31, 2014 at 9:56 am Reply

      Thank you – it makes me mad that a Government service can make money out of our personal information, without asking out permission. Verite

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