If you are going to spend your hard-earned cash on
Or find it useless – flippant – superficial?
Well, if you are a patient, I hope you will find helpful, useful information – with some humour, in this layman’s book on Inflammatory Breast Cancer.
And if you are one of my favourite nurses – you will have a wry smile at the way I talk, and thank heaven not all patients were like me!
This is written from a patient’s viewpoint. So don’t be shocked by the nicknames I gave some of my medics. Or the fact that I litter the book with names of commercial companies that made clinically-trialled products that helped me. Delicate souls will be horrified by the use of company names, but doctors and nurses have no hesitation on giving out names of drugs, and those are made by companies who measure their profits in BILLIONS – not ordinary millions. So why shouldn’t we be given names of products that can help with the awful side effects of these drugs?
If you are a doctor, and treated as a Higher Being, I might not give you due deference you expect – especially if you were ‘Dr. 30-second’ or ‘Pompous Professor’.
And if you like to blind us with science, you won’t like the 17 page Glossary. I have just been reading a book ‘designed for patients’ which thinks it can get by with an eleven- yes, 11 – word Glossary.
If you are a nurse, this is NOT a medical text-book. You will scream at the way I re-name medical procedures, and question the way You are taught to treat us. And ask why a Multi-disciplanary Team NEVER includes the most important member: the patient.
Cancer is a frightening condition; Inflammatory Breast Cancer more so than many. So you must excuse us if we get stroppy, and use black humour to keep us going.
You and the Team are there to give us the facts – I tried to remember what I was feeling at the time – and the sometimes silly things that were bothering me, when I should have reacted differently according to text-books and nurses’ training. But then we are human, so sometimes don’t behave the way we are told to.
And TLC is sometimes totally forgotten in medical training – but we respond to this far better than being told “YOU are only a patient”.
I have NO medical training, but justify writing this book because I can call myself an ‘Expert Patient’.
Has this been endorsed by a British Hospital? Whew! After comments about some hospital treatment I received, and after the things I have said about superior treatment in European hospitals – not B likely!
But if you like Christine Clifford Beckwith’s black humour and her take on situations cancer patients find themselves in (well, you’ve got to laugh or else you would cry), then I hope you will like this book.